Shire plc (LSE: SHP, NASDAQ: SHPGY), the global specialty biopharmaceutical company, announced its support of World Rare Disease Day, joining patients, healthcare providers, and patient organizations around the world to support a day that focuses attention on rare diseases as a public health issue, and highlights the need for more understanding and awareness about these diseases.

Observed annually on the last day of February, World Rare Disease Day is coordinated at the international level by the European Organisation for Rare Diseases (EURORDIS) and the National Organization for Rare Disorders (NORD) in the US. The aim is to draw attention to the gaps in healthcare that exist for rare disease patients worldwide, and work to find global solutions.

It is estimated that there are between 5,000 and 8,000 known rare diseases affecting around 250 million people in the world. As a leader in the orphan disease space for over twenty years, Shire has focused its work on researching, developing and marketing therapies for Fabry disease, Hereditary Angioedema (HAE), Hunter syndrome, and Gaucher disease, as well as building and investing in a pipeline of innovative products and solutions to treat rare diseases.

"For many patients and their families, the journey to a diagnosis and subsequent treatment for a rare disease can be a long, complicated process," said Sylvie Grégoire, President of Shire HGT. "Shire is committed to enabling people with life-altering conditions to lead better lives - and for us, this includes improving access to information as well as providing much-needed treatment for rare diseases. We are proud to support World Rare Disease Day and hope that this day can highlight the amazing people who encompass the rare disease community, and their unique and important situation as a global public health concern."

Shire's Global World Rare Disease Day Initiatives

In conjunction with World Rare Disease Day 2011, Shire is extending and updating BraveCommunity, its online resource center that aims to connect patients with each other and to provide important information about rare diseases. First launched in the U.S. in early 2009, the site is now available to UK audiences, with additional country-specific sites to follow. Please visit here to sign up to request information about specific rare genetic diseases.

As part of its external initiatives, Shire is also supporting the Global Genes Project "Wear That You CareTM" campaign, a grassroots effort to use denim jeans to raise global awareness of rare genetic disorders. The Company plans to hand out over 5000 denim blue ribbons to employees at various corporate locations worldwide.

In Switzerland, Shire will provide sponsorship support to the first 'STOP RARE' disease awareness event in Lausanne, as well as the Symposium "Wissen Heilt!" held in Basel on February 26th.

Source:
Shire plc